Terms and Conditions

The information provided via this website is intended for general educational and informative purposes only. It is not intended as a substitute for medical or professional services nor should it replace the relationship that exists between patients, their healthcare professionals and other healthcare providers.

The Niemann-Pick disease type C Suspicion Index (NPC-SI) is a practical tool to support healthcare professionals in recognising the signs of NPC and identifying suspected patients for diagnostic testing. The NPC-SI is not a diagnostic tool; definitive diagnostic testing for NPC should take place at the direction of a healthcare professional.

The information provided should not be solely relied upon for diagnosis, treatment choices or as a replacement for any information provided by a healthcare professional.

Whilst the International Niemann-Pick Disease Alliance (INPDA) will take every care to ensure that the NPC-SI content is correct, appropriate and up to date, we will accept no responsibility or liability for any loss or damages arising from, or in connection with, the contents or the use of the NPC-SI or the supporting information provided.

The INPDA does not endorse any specific medical product or treatment. Therefore, no action, treatment, independent entities or persons are endorsed, and all information is provided without warranty. Similarly, we take no responsibility for the quality or accuracy of information provided via links to external websites and resources operated by third parties; the inclusion of such links/resources does not imply an endorsement of the products/views expressed.

The logos of the INPDA and the NPC-SI are our property and must not be copied, reproduced or displayed without our prior written permission.

Furthermore, no part of our website may be copied, reproduced or displayed without our express permission. The INPDA is registered with the Charity Commission in England and Wales, Charity No: 1150256 and with Companies House as a company limited by guarantee in England & Wales, Company No. 08287609. The registered address of the INPDA is Suite 2, Vermont House, Concord, Washington, Tyne and Wear, NE37 2SQ, UK.